During a Time that Feels Wildly Unbalanced
The spectrum of emotions that has plagued my mind for the last month and a half has definitely taken its toll by making me feel completely unbalanced and out of sync.
As I wrote about in one of my recent posts “Very Challenging Time”, A my daughter’s Scoliosis journey presented detours that I hadn’t expected. Almost a month after her surgery she was finally released from the hospital and I felt positive about the road to recovery from there but what I hadn’t foreseen was that we would be back at the hospital 4 days later because one of the infections she had (unrelated to the surgery) had come raging back with a vengeance.
The time period that evolved when the doctors were trying to determine the source of her sickness was terrifying, to say the least, they covered everything and I mean everything! As a parent it is difficult to have to sit back and watch them work especially if your child is stressed by it, as I had said my daughter recently had Scoliosis surgery with rods and screws fused to her spine and only a month ago. I realize that they have to determine the source of her sickness but I have to admit it was extremely difficult to watch them push up and down her spine to see if she flinched anywhere. I’m thinking “of course it bothers and hurts her some, what would anyone expect after only a month given the significance of the surgery”, I kept asking them to call someone from that team of specialists because they all knew her case intimately but until they had determined that was the cause that wasn’t going to happen. As I said I realize they weren’t trying to hurt her and wanted to make sure they checked every avenue so they could get her the appropriate treatment but it was really difficult to watch and as I write this it makes me feel like I’m making this all about me but as a parent, their pain and discomfort feels 100 times yours. You could throw anything in my path and I can handle it but it’s amazing how anything to do with our children can bring us to our knees and provoke such a feeling of helplessness.
After 48 hours of constant testing, poking, prodding and only 1 ½ hours sleep for my daughter it was finally determined that one of previous infections had not been fully eliminated so course of treatment followed and after a few days she started to respond and get back to being herself and after another 8 days in the hospital she has been released again.
I’m trying to find my balance again but it’s difficult because I feel like the threat of this re-occurring is looming around me and I am hesitant to allow myself into the space of feeling confident that things are going to be Ok. The slightest instance of any symptom for pretty much anything out there keeps terrorizing my mind and I know that this is only possible because I am basically “running on empty”. As much as the first round scared me, the second round has completely drained me and severely challenged my inner strength and faith. I know it will come back but it may take me some time to trust it. I also know I’m lucky and blessed that her prognosis is positive but my mind won’t allow me to fully embrace that yet.
There are many parents out there with children that are sick and the source is unknown or the source is known and the outcome is not positive and I can’t even imagine what life must be like for them or how they manage to deal with it daily. I can only offer my sincerest compassion for the roller coaster ride I’m sure they are constantly on, as with everything (including health challenges) there are ups and down, good days and bad days. I can only hope and pray for those that are currently in the midst of these kinds of challenges that the good days fill their hearts with enough love to carry them through the bad ones.
As I always say “Everything happens for a reason” and one of my beliefs is that we don’t go through difficult challenges for no reason. There is a purpose, and I’ve always believed that we are put through difficulty to make us stronger for something that is to come in our future. Even though I know my difficulty at this time isn’t as difficult as others it makes me wonder what is ahead that requires me to develop as much strength as it’s taking me to get through this.
I have, am and always will be about “all things positive” and I know I will get back there but this dip at this time has set me back more than I could have ever imagined or predicted. The positive aspect of this experience is that it has increased my understanding, empathy and admiration for those that power through these difficult experiences with great integrity and strength of character.